Around 800,000 Australians experience the unpredictable and often debilitating effect of epilepsy. A person can live in constant despair, unable to understand symptoms, the impact of their diagnosis and unsure of when their next seizure will happen. And the seizures themselves can have a physical toll. Epilepsy presents many challenges in daily life; however education and support can make the difference.
Carol Ireland, CEO of Epilepsy Action Australia (EAA) says that, “research shows that Indigenous Australians are six times more likely to be hospitalised for a seizure than their non-Indigenous counterparts. The organisation saw the importance of providing a vital tool to those at the forefront of healthcare in Indigenous communities.”
Yarning Epilepsy is a free online course that provides linguistically and culturally tailored epilepsy education to Aboriginal and Torres Strait Islander healthcare, disability workers, liaison officers, community workers and their communities.
The course covers what epilepsy is and what it is not, and how to recognise the seven types of seizure activity. It covers how to apply seizure first aid for tonic clonic seizures and focal seizures with altered awareness; and how to provide accurate health information to the clients you work with about epilepsy, seizure first aid and self-management strategies.
Aunt Sue Blacklock and Gillian Bosner made valuable contributions to the development of this course. Aunt Sue Blacklock is a respected elder of the Nucoorilma people, Gamilaraay Nation Chairperson, Winangay Aboriginal Resources and Ambassador for Children, Australian Centre for Child Protection. Gillian Bonser is a Consultant for Winangay Aboriginal Resources.
To access this free resource, call Epilepsy Action Australia on 1300 37 45 37 or email [email protected]